Page with closed comments

Ammi demo - Image 9

Fusce convallis metus id felis luctus adipiscing. Pellentesque egestas, neque sit amet convallis pulvinar, justo nulla eleifend augue, ac auctor orci leo non est. Quisque id mi. Ut tincidunt tincidunt erat. Etiam feugiat lorem non metus. Vestibulum dapibus nunc ac augue. Curabitur vestibulum aliquam leo. Praesent egestas neque eu enim. In hac habitasse platea dictumst. Fusce a quam. Etiam ut purus mattis mauris sodales aliquam. Curabitur nisi. Quisque malesuada placerat nisl. Nam ipsum risus, rutrum vitae, vestibulum eu, molestie vel, lacus. Sed augue ipsum, egestas nec, vestibulum et, malesuada adipiscing, dui.

Vestibulum facilisis, purus nec pulvinar iaculis, ligula mi congue nunc, vitae euismod ligula.Lorem ipsum

Nulla neque dolor, sagittis eget, iaculis quis, molestie non, velit. Mauris turpis nunc, blandit et, volutpat molestie, porta ut, ligula. Fusce pharetra convallis urna. Quisque ut nisi. Donec mi odio, faucibus at, scelerisque quis, convallis in, nisi. Suspendisse non nisl sit amet velit hendrerit rutrum. Ut leo. Ut a nisl id ante tempus hendrerit. Proin pretium, leo ac pellentesque mollis, felis nunc ultrices eros, sed gravida augue augue mollis justo. Suspendisse eu ligula. Nulla facilisi. Donec id justo. Praesent porttitor, nulla vitae posuere iaculis, arcu nisl dignissim dolor.

Share:

Posts from our blog:

MS Reclamation

Ocrelizumab and COVID-19

Guidance for PwMS from their neurologists seems to have been “carry on per usual” with COVID guidance, which for a lot of folks seems to mean to do them as they normally would, which I completely understand the want for, but please, stay aware and cautious out there.  I’m seeing so much misinformation about the Anti-CD20 monoclonal antibodies (mAbs). Predominantly: neurologists telling their patients there isn’t cause for exceptional caution with any DMT. With a couple of therapies though, this might not be precisely accurate.

[…]

Read more No Comments
MS Reclamation

Social Media Chronic Illness Gatekeeping Rant

Do you remember when you first had symptoms of your disease? When you visited three or four, a dozen doctors and specialists, had referrals from referrals, had a gallon’s worth of blood draws? Maybe your doctor referred you for therapy, prescribed an antidepressant because it was “just anxiety”, or “just depression”?

Do you recall how dismissive your friends and family could be? Do you remember that moment when you found the right doctor, that one person who believed you? When you received your diagnosis, and felt validated, or even relieved, that you finally had an answer?

You likely understand that your experience is not the only experience of all of those diagnosed with the same disease/disorder you share. Your immune system decided you don’t get to walk this week, but there’s a wonderful woman in your support group who’s blind in one eye and struggling to find the right words, it’s all awful and you can see and understand what’s right there in front of you.

My question is, why would you feel like the pharmaceutical companies, your doctor, and your personal experiences have given you all of the answers? That you completely comprehend the full extent of this condition and possible side effects to related medications? […]

Read more No Comments
Nerd

2020 Reading Goals

I’m posting this here so I can hate myself if I’m not still reading when I come to this site. It’s self-nagging, “accountability” (ugh), and hey maybe a couple of fun book recommendations. Maybe not, I have a lot of non-fiction I hope to read before this year is out. As it’s been a while since I’ve read prolifically, I’m only going to hold myself to a minimum of one book a month. […]

Read more No Comments
Uncategorized

Changing Gears

I was in college when I had my first major/obvious exacerbation.  I’d had some symptoms prior but I’d brushed them off as nothing. This first exacerbation was about six years before I was diagnosed, and the result of testing was my doctor telling me we’d ruled out everything *but* MS, and she strongly suspected that’s what was wrong, but I couldn’t afford an MRI or further testing at the time. I recovered, and she told me I may just never have an attack again, and to hope for the best.

I graduated, moved, and was working in my field part-time while looking for full-time work in the field when my life went sideways.  A lot of things went really wrong at the same time, my stress levels hit an all-time high, and about the point where I thought it was over and I could “get back to it”, I had an attack. Then another, then… a prolonged period a ridiculous amount of testing.  MRIs. A lumbar puncture to confirm, then a month-long recovery from the LP. MS went from being “suspected” to “confirmed”.  I was put on Tecfidera, changed neurologists, switched to Gilenya, had breakthrough activity, then switched to Ocrevus (currently).

My degree and work I was pursuing were in a field that could easily lead to “crunch”, 100-hour weeks. Layoffs, high stress, high burnout.   I knew that well in advance before I started pursuing my degree, and I wanted it. At the time I “knew” I could handle it. […]

Read more No Comments