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MS Reclamation

Pulse Prednisone & Skincare

I’ve been trying to find anything about the dryness situation I have going on after a pulse of prednisone and a quick search on the internet shows thin skin, dryness, bruising are all side effects, but details or coping suggestions are absent in favor of the severe side-effects. This is fair, all else considered.

I don’t know if I’m the only one out there that feels as if prednisone is a whole-body desiccant (I get the range of “extreme thirst” side effects), but I’d like to share what’s been working for me in the event this might help anyone else. I know for me these “temporary side effects” have an impact on my skin texture and how makeup wears for at least a month after going through a pulse treatment.

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MS Reclamation

My Supplements, for MS.

I apologize for any confusing language, wrecked grammar, emoji, or random segues in advance. This is likely incomplete and will be subject to edits later. Any updates or changes to my routine or experience, I’ll attempt to post here. I hope I clean this up later.

I need to take stock of what I’m taking, why, and hopefully cut back on this stupidly pricey adventure. I figured I’d share in case any of the referenced material could help others.

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MS Reclamation

Social Media Medical Gatekeeping Rant

Remember when you first had symptoms of your disease? When you visited three or four, a dozen doctors and specialists, had referrals from referrals, had a gallon worth of blood draws? Maybe your doctor referred you for therapy, prescribed an antidepressant because it was “just anxiety”, or “just depression”?

Recall how dismissive your friends and family could be, perhaps still are. Do you remember that moment when you found the right doctor, that one person who believed you? When you received your diagnosis, and felt validated, or even relieved, that you finally had an answer?

You may understand that your experience is not the only experience of all of those diagnosed with the same disease/disorder you share. Your immune system decided you don’t get to walk this week, but there’s a wonderful woman in your support group who’s blind in one eye and struggling to find the right words, it’s all awful and you can see and understand what’s right there in front of you.

Considering this, why do you feel like the pharmaceutical companies, your doctor, and your personal experiences have given you all of the answers? That you completely comprehend the full extent of this condition and possible side effects to related medications? […]

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Mental Wallaby, Recipes

Some Tea

[And Now for Something Completely Different.] Beverage tea, hot, iced, however not… gossip, like actual tea.

I grew up with the cursed yellow teabags. Lipton sun tea, Celestial Seasonings Orange Spice, super mainstream grocery store findings. I thought I hated tea and didn’t really consider it until I was 25 when I decided I would make better choices for my health. Fortunately, at the time I was working at a health food/supplement shop and had access to a broader variety of choices.

Since I’ve come to love and lose a variety of teas, mostly specialty or imported, and my collection is ever-evolving. 52teas ultimately shifted my trajectory and helped me move past some of my preexisting biases, particularly with regards to herbal and oolong teas. Now I hardly ever go for the “flavored” varieties, but it was an important step for me to realize the difference between quality and stuff that’s mass-produced and sitting in a box past the expiration date (as in actually gone bad, not aged).

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