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MS Reclamation

Multiple Sclerosis Within Black Demographics

Per the Mayo Clinic, “Risk Factors” for MS include:

White people, particularly those of Northern European descent, are at highest risk of developing MS. People of Asian, African or Native American descent have the lowest risk.

Let me go off script a moment and be blunt here. WE KNOW THIS IS FALSE. If that looks like I’m shouting, not sorry: I am. I’m angry and heartbroken. This is where I end up every time I think about it. I’ll try to be civil for the sake of providing useful information and spreading awareness, but this is injustice.

In an article titled “Multiple Sclerosis More Common In Black Women Than White” on Medical News Today:

“Of these new cases, black patients had a 47% greater likelihood of MS compared to white patients. Results also showed that Hispanics had a 50% reduced risk compared to white patients, and Asians had a 80% lower chance than whites.”

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MS Reclamation

Ocrelizumab and COVID-19

Guidance for PwMS from their neurologists seems to have been “carry on per usual” with COVID guidance, which for a lot of folks seems to mean to do them as they normally would, which I completely understand the want for, but please, stay aware and cautious out there.  I’m seeing so much misinformation about the Anti-CD20 monoclonal antibodies (mAbs). Predominantly: neurologists telling their patients there isn’t cause for exceptional caution with any DMT. With a couple of therapies though, this might not be precisely accurate.

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MS Reclamation

My Supplements, for MS.

Fair warning: I’m writing this while exceptionally tired,  with an insurmountable mountain of anxiety and fatigue. I apologize for any confusing language, wrecked grammar, emoji, or random segues in advance. This is likely incomplete and will be subject to edits later. Any updates or changes to my routine or experience, I’ll attempt to post here. I hope I clean this up later.

I need to take stock of what I’m taking, why, and hopefully cut back on this stupidly pricey adventure. I figured I’d share in case any of the referenced material could help others.

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MS Reclamation

Pulse Prednisone & Skincare

I’ve been trying to find anything about the oil slick dryness situation I have going on after a pulse of prednisone and a quick browse through the internet shows thin skin, dryness, bruising are all side effects, but it’s a bit glossed over in favor of the severe side-effects. This is entirely fair, all else considered.

Still, when I feel awful but I’m somewhat functional, I’d rather at least feel okay about how I’m looking, if nothing else.

I don’t know if I’m the only one out there that feels as if prednisone is a whole-body desiccant (I get the range of “extreme thirst” side effects), but I’d like to share what’s been working for me in the event this might help anyone else. I know for me these “temporary side effects” have an impact on my skin texture and how makeup wears for at least a month after going through a pulse treatment.

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