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Mental Wallaby, MS Reclamation, Uncategorized

Trying CBD Again 👍

I’ve tried CBD before. Being specific, I’ve tried THC-free CBD isolate and a cheap CBD extract, I think it was with the ACDC strain (historically any chance I had for ACDC I took it, since you know, ACϟDC. Probably not the soundest medical decision.)

Last week after Panic Day 2020, I had scheduled an appointment with my GP. Also spoke with my therapist and shot my neurologist a message. A friend recommended I try Lexapro for the anxiety, which I was on board for, up until my anxiety increased at the thought of taking another SSRI. I had a bad experience with Paxil in my 20s, one I very specifically prefer not to revisit. Looking into antidepressants that are good for MS patients with anxiety, I decided to ask after Effexor, and both my neurologist and therapist were on board. I waited as I wanted the final ruling decision to be my GP.

By Saturday night I had grown increasingly anxious about Effexor, polypharmacy, and everything that goes with that. I don’t think I have a chemical imbalance, I know I have an anxiety disorder, and that I’m trapped in my house without my friends/family to help me remember outside isn’t evil and coming inside to get me. […]

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MS Reclamation

Pulse Prednisone & Skincare

I’ve been trying to find anything about the dryness situation I have going on after a pulse of prednisone and a quick search on the internet shows thin skin, dryness, bruising are all side effects, but details or coping suggestions are absent in favor of the severe side-effects. This is fair, all else considered.

I don’t know if I’m the only one out there that feels as if prednisone is a whole-body desiccant (I get the range of “extreme thirst” side effects), but I’d like to share what’s been working for me in the event this might help anyone else. I know for me these “temporary side effects” have an impact on my skin texture and how makeup wears for at least a month after going through a pulse treatment.

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MS Reclamation, Research

FDA and Pharmaceutical Reporting Vibes, Resources

I’ve previously posted about what I’ve seen as symptom/side-effect shaming or whatever you would call that, within the MS Facebook community. What I didn’t get into is the absurd amount of data I’ve found, that is generally unknown by both the public and healthcare providers, whether that be through simply being unaware of resources, or deliberately for the sake of not losing sight of more prominent concerns.

A lot of the data I’ve been looking at has been resources for adverse reactions, physician regard for patient concerns, and disclosure practices of pharmaceutical companies. Or rather, a lack of, and the reasons behind this. The research I’ve been going through is more patient-focused, I hope to use it to provide a solution that benefits those that can be helped by it. I don’t want to go into details for this project yet, for several reasons, but I don’t want to sit on the things I’m seeing in case their relevancy isn’t apparent or, people just don’t happen across them.

Following is a small list of medical studies and articles, including brief summaries.

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MS Reclamation

I Ghosted My Neurologist 💔

I don’t think he was a bad dude. It seemed as if in other circumstances he’d be fun and charismatic. He was engaging and interesting when speaking, self-assured in interactions, super confident. He was funny. He generally reviews very well for specialization in neurology, all signs point to him being a fantastic physician. Overall I really liked him. He just wasn’t for me. Whether it was the MS specifically that he was ill-equipped to handle or what, I couldn’t say.

Avoiding doctors, medical professionals, anything to do with white lab coats has kind of been my forte. When I was diagnosed, “they got me” was my first thought. I’d only ever take medication as needed, following directions to the letter, but I would refuse anything long-term. Medicine scares me. Doctors have been intimidating. It’s not in the phobic sense, just a profound discomfort with the unknown if something weren’t medically necessary.

I knew disease-modifying drugs would be medically necessary. (If you’re new here: “Goals of the MS medicines are a birth control pill against a future event”, credit Dr. Aaron Boster, “Potholes in Brain and Spinal Cord, a literal description about Multiple Sclerosis“.)

Strike 1: “It’s probably not Multiple Sclerosis, since you haven’t had symptoms before.”

During our first appointment, he had my medical history right there in a manila folder. I tried telling him no, I’d been having symptoms by that point for at least six years, my records from my GP years prior said “probable MS”. I needed an MRI, at the time I couldn’t afford one and didn’t have the insurance. I’d had symptoms over the years since, but generally under the same insurance-circumstances, or within a range of severity I could ignore.

It seemed like he didn’t hear me. I accepted this as what probably happened at the time, though since I feel otherwise. More like he’d made decisions on the course of how this would play out and nothing I said mattered.

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