Tag: ms

MS Reclamation

Social Media Chronic Illness Gatekeeping Rant

Do you remember when you first had symptoms of your disease? When you visited three or four, a dozen doctors and specialists, had referrals from referrals, had a gallon’s worth of blood draws? Maybe your doctor referred you for therapy, prescribed an antidepressant because it was “just anxiety”, or “just depression”?

Do you recall how dismissive your friends and family could be? Do you remember that moment when you found the right doctor, that one person who believed you? When you received your diagnosis, and felt validated, or even relieved, that you finally had an answer?

You likely understand that your experience is not the only experience of all of those diagnosed with the same disease/disorder you share. Your immune system decided you don’t get to walk this week, but there’s a wonderful woman in your support group who’s blind in one eye and struggling to find the right words, it’s all awful and you can see and understand what’s right there in front of you.

My question is, why would you feel like the pharmaceutical companies, your doctor, and your personal experiences have given you all of the answers? That you completely comprehend the full extent of this condition and possible side effects to related medications? […]

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MS Reclamation

My Supplements, for MS.

Fair warning: I’m writing this while exceptionally tired,  with an insurmountable mountain of anxiety and fatigue. I apologize for any confusing language, wrecked grammar, emoji, or random segues in advance. This is likely incomplete and will be subject to edits later. Any updates or changes to my routine or experience, I’ll attempt to post here. I hope I clean this up later.

I need to take stock of what I’m taking, why, and hopefully cut back on this stupidly pricey adventure. I figured I’d share in case any of the referenced material could help others.

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MS Reclamation

Multiple Sclerosis Within Black Demographics

Per the Mayo Clinic, “Risk Factors” for MS include:

White people, particularly those of Northern European descent, are at highest risk of developing MS. People of Asian, African or Native American descent have the lowest risk.

Let me go off script a moment and be blunt here. WE KNOW THIS IS FALSE. If that looks like I’m shouting, not sorry: I am. I’m angry and heartbroken. This is where I end up every time I think about it. I’ll try to be civil for the sake of providing useful information and spreading awareness, but this is injustice.

In an article titled “Multiple Sclerosis More Common In Black Women Than White” on Medical News Today:

“Of these new cases, black patients had a 47% greater likelihood of MS compared to white patients. Results also showed that Hispanics had a 50% reduced risk compared to white patients, and Asians had a 80% lower chance than whites.”

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